Don't even ask me what day it is..... can't even tell ya!! LOL! I only know the time of day when my reminder alarm goes off at 8am and 8pm to remind me that it is medicine time...seriously!
It has been a tough week. I developed very swollen, painful lymph nodes Sunday night. They continued to get worse. I do not have a fever that usually goes along with a sore throat and swollen lymph nodes....that is obviously a sign of infection. So.... back to calling the doctors.
Started to get the run around.....primary says call the neurologist - neurologist says call the primary.... I say - call the neurosurgeon. I knew he would help me. It was either that or the ER......
My neurosurgeon sent me for blood work, a STAT CT scan of the brain with contrast to rule out a brain infection. Was then immediately sent for a MRI of the brain with contrast for reassurance - NO SIGN OF INFECTION in or on my brain!!!!! Good thing - yessirrebob!
However, what is causing my lymph nodes to be the size of grapes??? My neurosurgeon was so kind and truly showed concern when he felt my neck. He is an excellent surgeon. I am so thankful that he was on call the night I went to the hospital and that he is the one who was entrusted with my care.
I was then sent to my primary provider. He started me on antibiotics, ordered a CT scan with contrast of my neck and more blood work. I was given four sheets of CT scan images, but I can't make heads or tails for nothing. I see a bunch of white blobs that I don't think should be there.
My neurosurgeon personally called me this afternoon to check on me to see how I was feeling. He was hoping to hear "much better", but instead was told I am still waiting to have diagnostic testing.... he sounded just as frustrated as I am.
I have been injected with so much contrast and had more needles stuck in me this week - I should be leaking contrast from my arms. My veins are terrible right now......I feel so bad for the techs/medical assistants who have to find a vein on me. I guess I need to drink more fluid....does sweet tea count as fluid?
I have mentioned the new hairdo that I am sporting..... now - you tell me that I do not look like a baboon and be honest..... seriously! (I know a lot of people who would not show a pic like this..... I have nothing to hide. it is what it is..... once it is long again, I will take my baboon-looking self to my hairdresser and no one will ever know) Now that is just purdy right there....... and yes - it is coming in grey......I am blaming that on my worrisome self....
You know the baboon makes you smile...... :o)
Looking forward to what tomorrow brings.... good news, bad news ....whatever - I just want to know. I am in good hands and I know so many people are still praying for me. Thank you my friends!
I just have to share..... this song makes me happy.....it is the reminder song on my phone alarm for medicine time.....
"You got worries - you can drop them in the blue ocean, but you gotta get away to where the boat leaves from"....... <3 y'all...
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