So it has been almost two months and I am still adjusting to this......my new normal. I don't like the new normal (and I don't think anyone around me does either). once I am allowed to taper off of this medication - life will be normal again. I look "normal" to you on the outside (other than my kidrock-baboon hairstyle), but on the inside - there is a different normal going on. The little simple things - take effort now.
GOOD NEWS: My EEG that was done last week showed NO evidence of any seizure activity!!! I was so happy and that continued my HOPE and courage!! However, I still have to continue to take the anti-seizure medication since there is residual tumor. (i understand.....) MRI is scheduled for next week and then I see the neurologist and new neurosurgeon on the 19th. Stay tuned for GOOD NEWS!! :o)
I started back to work. It is so nice to be back!! (not a lot of people can say that) Although - I find that I get sidetracked while trying to multitask. I used to be able to do ten different things at once..... now it just takes me a little longer. I guess that is where patience comes in..... something I lack with myself and could use a huge can at the moment!!
I am still sporting the KidRock look, but now you can add a touch of baboon to the hairdo. Did you listen to the Kid Rock song I posted = "Born Free"? That is dedicated to my residual tumor. Dear Tumor: "You can't keep no chains on me" - you hear me! When I am done with you - "I will yell it from the mountain high".
I ended my last post with Hakuna Matata.... no worries. well.... I am trying, I really am. Sunday night- I developed a swollen lymph node directly behind my ear. It is hot and so very painful! We called the neurosurgeon and he wants me to come in Tuesday to see what is causing the swelling..... the swelling has increased throughout the day (Monday).... I think just about every lymph node I have on my head and neck is swollen to some degree. I made the mistake of Googling to see what it could be..... so - I am worried. Hoping that I get an antibiotic to send this infection or whatever it is trying to hinder my healing right on down the road.
Asking for prayers since so many of you have lifted me up this far.
There are so many days that I wish I had me a Ms. Aibileen (from the movie "The Help") I would treat her with respect and she would be my friend - unlike how the snobs in the movie treated her. I could use the wisdom and knowledge from Ms Aibileen and obviously some help with things that I just can't do without wearing myself out. The movie comes out on DVD Tuesday so I will be going to get it and hope to watch it with a friend who is coming over late Tuesday afternoon!!
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