I am feeling better physically, although - I can honestly say that if it were not for the stupid, awful, life altering side effects from the anti-seizure medication = I WOULD FEEL WONDERFUL!
!!!WARNING!!! GRIPE FEST AHEAD = I feel extremely tired all the time, no energy, my bones and joints hurt, constant sore throat, stay nauseated 24/7, super dizzy, the room spins out of control, ..... etc! oh yeah - and I am an emotional basket case....smiling one minute - crying the next. I have to concentrate on staying focused. I forget words while I am talking. I still do not sleep. I have NO appetite whatsoever (which is a good thing because with this worry - I would eat chocolate all day long!!) ..... all because of the KEPPRA - and this is the one with the least side effects from this group of meds!
Based on the forums that I have read from other brain tumor SURVIVORS - so many are dealing with the same issues....some worse than others.
Dear Doc: How long do I have to stay on this medicine? Will you know if I stop taking it?!!! How about we pretend I am taking it and if I have another seizure - so be it! I won't tell if you don't!
OKAY, ENOUGH WITH THE GRIPE FEST!........ sorry
I had an EEG (electrical wave brain scan) today at Moffitt. I will not know the results until I go back December 19th. I will see the neurosurgeon and the neurologist to discuss my progress and possible radiation therapy....I will know if the residual tumor has increased in size (praying it just decided to disappear!!!!! wouldn't that be a testimony!)
Thanks for your encouragement along the way.
A dear friend recently told me -
"THIS IS TEMPORARY!!"
Until then - I will fight through the tears of frustration and try to ignore the side effects.
Hope everyone had a nice Thanksgiving! So hard to believe that Christmas will be here soon!!
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